The Santa Dash is simply superb, Colour Splash is always awesome – but Bubble Rush really blew us away!
The Fylde Coast’s first ever Bubble Rush attracted over 2,300 participants and with money still coming in has raised well over £50,000 for Brian House Children’s Hospice.
A brand new event for the Brian House 21st birthday year, Bubble Rush really captured people’s imaginations. Participants from under five to over 80 enjoyed some seriously foamy fun, making it an undoubted highlight of our events calendar.
A huge thank you to our Corporate ‘bubble station’ sponsors Ribby Hall Village, Sandcastle Water Park and Pink Link Ladies; to our volunteer marshals, our wonderful compere and photographer and to everyone who made it such a fun day. If you took part, your medal will be on its way to you very soon.
It certainly left everyone wanting more and the big question has been: when will we do it again?
Watch this space, but if you can’t wait until another Bubble Rush, remember the fabulous Blackpool 10K Fun Run is just a few weeks away!
Trinity Hospice is taking part in a major study looking at how people with a history of substance misuse access end of life care. The hospice is one of three to team up with Manchester Metropolitan University in a bid to fill a ‘gap in knowledge’ on how people with drug or alcohol dependency obtain palliative care.
Face to face interviews will be conducted by the university and Trinity’s palliative care researcher Anita Griggs is currently looking for patients, families and carers to be part of the study.
She says: ‘There is a lot of anecdotal evidence that shows people with drug and alcohol problems are slipping through the net when it comes to palliative care. There’s a real gap in knowledge, which is why Trinity is keen to be involved in this research.
‘As a teaching hospice we are always pro-active in research opportunities such as this. If a group in our local community is not getting access to the symptom control, pain relief and dignity in dying that are key parts of palliative care, then we need to know why.’
Over recent years Trinity Hospice has taken part in a wide range of academic studies. The hospice has a mission that by 2020 everyone living on the Fylde Coast should have access to excellent end of life care – but there are some groups across the community who are ‘hard to reach’ and those with a history of substance abuse are one.
Dr Susan Salt, Medical Director at Trinity says: ‘’Blackpool, like many coastal towns, has higher incidences of substance misuse, and we sadly do see cases of people whose history of addiction makes it hard for them to access the appropriate palliative and end of life care. Very often they have no local family unit, no stable home, no one to advocate for them and a complex medical history. But hospice care should be for all who need it and hospices should do everything they can to ensure they reach the vulnerable groups in our community.’
The Manchester Met team is going to Denmark and Spain later this year to present the study to international audiences.
A new service to help people worried about their memory, or residents diagnosed with dementia, their family and friends, called The Fylde Coast Dementia Hub, is launched this month.
The aim is to give those affected by the condition on the Fylde Coast area a ‘one-stop shop’ where they can get information, advice and practical support. This is a joint initiative between Clifton Hospital, Blackpool and Fylde & Wyre Dementia Action Alliances, Trinity Hospice and Lancaster University, supported by Blackpool Town Council, The Alzheimer’s Society, Age UK, Blackpool Carers and many other organisations.
Dementia is a collection of symptoms caused by conditions which affect the brain. It affects a person’s mental abilities such as memory and thinking as well as their behaviour. The most common cause of dementia is Alzheimer’s disease.
There are currently over 10,000 people in Lancashire who have been diagnosed with dementia, but it is thought that the actual figure of people with the condition could be much higher. This means that thousands of people who could have dementia aren’t accessing treatments and support to help them live well.
This new Hub will build on the existing work of dementia-specialist organisations that already have a strong presence in the area. It will be an important part of providing early intervention and focus on maintaining independence in the community. It will provide advice from the memory clinic, nurses, financial planners, benefits advisors, lawyers, researchers, carer support, and palliative care as well as a chance to engage with people living with the condition.
Commenting, David Houston, Chief Executive at Trinity and Chairman of the Blackpool Dementia Action Alliance said: “We are pleased to be a part of this important new service. My mother is in the latter stages of dementia so my family and I know only too well why services like this are so important. Here at Trinity we are increasingly supporting patients and family members with dementia or mild cognitive impairment. It is vital that they access the same levels of health and social care support as other conditions and know where to find them.”
Dr Penny Foulds, Honorary Researcher at Lancaster University and founder of the Defying Dementia campaign said: ‘Research has revealed that early diagnosis can help people and their carers live well with dementia. We recognise people with dementia, and those who care for them, can feel isolated and often don’t know where to turn. This initiative is about helping our community know where to go for information and services when a diagnosis is made, or even before if they are worried about a loved one.’
Peter Brooks, Dementia Care Homes Officer at Blackpool Council said: “This is an ideal opportunity for people living with dementia, families and carers to meet together with professionals in one place to discuss issues face to face, rather than on a telephone or online -which can be difficult and frustrating.’
The Fylde Coast Dementia Hub will be held every month, starting on Friday 17th March, at Trinity Hospice, 2pm – 4pm. Everyone is welcome.
Civil Service Local has been supporting patients at Trinity Hospice since 2014. Its Government Access Point (GAP) visits to provide access to information from various departments including DWP, HMRC, Land Registry and Ministry of Defence.
GAP provides a friendly face-to-face advice service giving practical information, providing support for patients in a place they feel comfortable, and also helping family members at a difficult time.
Staff in Trinity’s Day Therapy Unit say the relationship with GAP is a really valuable one, and the team was pleased to host another visit recently.
Sister Deborah Wood says: ‘A great working relationship has been formed between our two very different environments. They are really committed and join our patient group every 16 weeks, when they can gain the confidence of our poorly and sometimes vulnerable patients.
‘Day Therapy patients are a mixture of ages and conditions, but as they approach end of life they can become anxious about financial issues and the stress of this can have a negative effect on them and their families. Most are not aware of the benefits available to them, and often feel they just haven’t got the energy to make that call.
‘The GAP team make the process accessible, making life so much easier for the patient, and often money can be found that has not been claimed. It gives our patients financial peace of mind, which also aids dignity as they approach end of life.
‘I have to admire the way the team work with our patients in what can be a difficult emotional environment. They show great respect and understanding, and the work they do here is hugely valued.’
Gemma Cooper, Lead for Trinity GAP team says: ‘I really enjoy the opportunity for face-to-face contact with our customers. It’s challenging, as I am frequently faced with situations that I would not come across in my day-to-day role, but I am in the privileged position of being able to help people who don’t know where to turn, and make a difference at a difficult time.’
Kathie Bates for Civil Service Local adds: ‘It is inspiring to see four years on how our pilot with Trinity Hospice has grown into a key part of Trinity’s support and advice service. It is always a privilege to meet the patients and staff at this amazing organisation.”
Trinity Hospice has a new logo. Devised after lengthy consultation with staff, volunteers and supporters, it gives the hospice a modern look in line with recent refurbishments. The new brand will gradually be rolled out across staff and volunteer uniforms, literature and signage and should soon become a familiar one across the Fylde Coast.
Designed with help from Manchester-based agency Epigram, who have supported numerous fundraising campaigns for the hospice, much of the work has been done by the hospice’s own team and the cost has been less than £5,000, paid for by a specific donation from a corporate supporter.
Trinity Hospice Chief Executive David Houston said: “We are all extremely proud of our refreshed brand. Our new logo takes its inspiration from the colours which launched Trinity over 30 years ago and from our gardens; presenting a feeling of calm, and of life continuing. We hope it helps in its own way to break down some of the myths associated with hospices, death and dying.
“The three seeds leaving the flower head are indicative of our three boroughs and also show that we provide hospice care in the hospital, throughout the community and in our own buildings. We always champion ‘compassion and care’ above all else, but we recognise that as the world changes, so must we.”
The new brand launch comes just weeks after the Hospice was awarded Gold Investors in People status, and at its most recent Care Quality Commission inspection in 2016 Trinity was rated as ‘Outstanding’.
David added: “We have put so much effort over the past six years into ensuring Trinity moves with thetimes but remains uniquely relevant to local people’s lives; we felt it was the right time for our brand to catch up and reflect the kind of complex care we provide today.
“Our research showed that the old Trinity logo was not memorable, even though those using our services associated us with excellent care. We wanted a really distinctive, modern new look because so many other charities with large marketing budgets could easily swamp us. But we were determined not to spend a lot of money, and for the past year we have allowed stocks of stationery, clothing and other items to run right down to avoid waste.
“We are a local charity that is no longer just a building. Today, Trinity supports more patients and families than ever, with its widest ever range of services. Our staff and volunteers work in the hospice and across the community day and night, and our nurses actually support more patients in their own homes, in care homes and at the hospital than in our In-patient Unit.
“I hope people will like our new look. It was chosen because it says there’s something very distinctive about the hospice. There are many strands to what we do and we support thousands of people each year, often at the most difficult time; but Trinity is a place full of colour and life, and a hub for excellence in palliative care across the Fylde Coast.”