Paediatric Palliative Care Resources
As Trinity Hospice and Palliative Care Services family includes Brain House Children’s Hospice, we are also committed to being an educational resource on paediatric palliative care.
These resources have been collated to provide you with free, easily accessible, high quality and reliable information to facilitate the management of children with life-limiting or complex health conditions.
ACT Website
ACT is a UK charity that works to achieve the best possible quality of life and care for every child and young person, and their family, who is not expected to reach adulthood due to life-limiting or life-threatening condition. ACT supports all professionals to deliver the best possible care and support, by sharing best practice and providing a range of educational tools, guidance, information and publications to improve their knowledge and skills. ACT also helps professionals to campaign for better provision, resources and policy that impact on children and families. The ‘help for professionals’ area of the ACT website is contains resources on: care pathways for babies, children and young people; transition care; end of life care; networks; education and practice; and workforce development.
Click here for link to www.act.org.uk homepage
Click here for link to ACT help for professionals page
ACT Children’s Palliative Care Handbook for GPs (2011)
A handbook for GPs that provides practical and emotional support to caring for children with life-limiting or life-threatening conditions, and their families.
Click here to download the Children’s Palliative Care Handbook for GPs
ACT Basic Symptom Control in Paediatric Palliative Care (2011)
A handbook containing comprehensive guidelines for symptom management and palliative care of children with life-limiting or complex health conditions. It provides both practical support and hands on clinical information on management of symptoms including pain management, infections, nausea and vomiting, seizures and muscle spasm, as well as a comprehensive prescribing formulary adapted from the Association of Paediatric Palliative Medicine’s master formulary. It has become known as the symptom control ‘industry bible’ for professionals, and is used by children’s palliative care doctors and nurses across the world.
Click here to download the Basic Symptom Control in Paediatric Palliative Care Handbook
Association of Paediatric Palliative Medicine (APPM) Master Formulary (2011)
A single standardised reference formulary that provides information on indications, routes and standardised doses for paediatric palliative medicine. Written by the Association of Paediatric Palliative Medicine (APPM) that represents doctors working in paediatric palliative care across all care settings in the UK.
Click here to download the APPM Master Formulary